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'My 220lbs Leg Keeps Me Prisoner In My Own Home' - YouTube
Channel: truly
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Woodleigh when I became a mobile I came
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to know about the importance of actually
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being outside for the last five years
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Aaron Raja Singh from Chennai in
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southern India has been virtually
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housebound he has a rare genetic
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condition which causes asymmetrical
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growth and his right leg is now more
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than five times it's normal size
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weighing around a hundred kilograms or
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220 pounds my life right now is actually
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restricted to this room
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what's a 10 by 10 square feet room and I
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mostly lie on the bed because my body is
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not made by God his inability to leave
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the house is also affecting his business
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I started my business in 2006 it's a
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small IT firm and the name is Kandice
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technologies Private Limited when I was
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mobile I was able to set up an office
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and have employees and I was able to go
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to the office every day and was able to
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manage everything did the health
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condition I was not able to go to my
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office and work so I started working
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from home and slowly at one point of
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time it's like I work only from my home
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so this makes me like I'm not in control
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of the work that I'm doing from the time
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he was born this type of variation
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between the two legs we're there but it
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was quite manageable when he started
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attending the school he was walking with
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some special shoes to adjust the height
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of the other leg growing up I started
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walking which never nobody actually
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thought that I would be walking but I
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adapted myself and
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then I was walking as a student he was
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young he was a very brilliant a but now
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his mobility is very much restricted
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point is physical problems doctors
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didn't know what was causing his
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condition and decided to see how it
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might develop as Aaron was still mobile
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amputation of his leg was decided
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against but now his condition is
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desperate today Aaron is going to the
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hospital for a checkup
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one of the few times he gets to leave
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his house it's been about five years
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that have been out of my ten by tens
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traffic room and now I am actually going
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out it feels like I'm excited and I'm
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going to see the doctor and thanks for
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Mabel to get better from now on
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how are you so it's been a year since
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I've seen you last
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what things have changed and how things
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are progressing okay so it's less than
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what it was before
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what Haroon has developed is a genetic
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problem meaning there is a mutation in
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the genes which is predisposing him to
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have a very asymmetrical growth meaning
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one part of the growth body is doing
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much more compared to the other part we
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call it a segmental overgrowth syndrome
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having said this it's a very rare
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condition as we can see here that's the
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right part of his lower limb which we
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can visibly see that's a very
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asymmetrical the right lower limb is
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much bigger compared to the left lower
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limb similarly we do have the other scan
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pictures which confirmed and here we can
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see not just his bones but also his soft
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tissue so we can clearly see that there
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is an asymmetry as we can see in Kim
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here it's the growth of the bone the
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tissue underneath everything together
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which is contributing to the excess
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growth of the particular part of the
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body as I said the treatment is at
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present very limited but research is
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going on worldwide it particularly in
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one of the universities in UK Cambridge
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University
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on the way home from the hospital the
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ambulance makes it D - it's like five
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years after that I'm actually seeing
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this beach now I'm feeling the breeze
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it's nice
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I need lot of people help and an
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ambulance to come over here seven years
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ago I used to ride my motorbike and used
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to come here and it was not a big thing
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but now it has become a great deal for
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me
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Erin hopes the bike getting his story
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out doctors somewhere in the world who
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might be able to help him
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he's also launched an online appeal to
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raise funds for specialized equipment to
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aid his mobility so now here he is
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seeking to society's help to get back to
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his mobile condition again because the
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normal wheelchairs can't even bear has
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made so he is not able to go out so that
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is worsening his condition both so it is
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a really big appeal from friends like us
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having a wheelchair and the van would
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actually change my life in a big way I
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could be mobile I would I could have
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human interactions I could just be like
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other people when I receive the
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wheelchair and when the first place that
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I would be going as my mother's
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graveyard so that is where I will start
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my journey again my hopes for the future
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is bright that I would be able to be a
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successful businessman as well as a good
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person and maybe I would be an
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inspiration to a lot of people
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