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What It's Like to Have Type 1 Diabetes | UC San Diego Health - YouTube
Channel: UC San Diego Health
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I'm joked to my wife if one of our kids
gets type 1 diabetes I'd probably end up
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liking that one more
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Hi everybody I'm
Dr. Jeremy Pettus and I'm here to tell
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you what it's like to both be a patient
living with type 1 diabetes and somebody
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who's also a physician treating people
with type 1
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okay which type of diabetes
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do you have and why well I have type 1
diabetes which is classically kind of
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like the juvenile form so I got it when
I was 15 so why I don't know you know we
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don't know why people get it I guess I
was the lucky one in the family
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okay what's it like to be a 15 year old with
diabetes in the 90s
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first of all there's no good time to get diabetes you know I would say
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people get it when they're 1, when they're 4, they're 15, when they're 55
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and every age has its issues I'm guessing
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but as a high schooler, kind of the classic
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I just didn't want to be different and
you know having to test my blood sugar
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at school and you know back then it was
this big glob of blood and would take a
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minute for it to give you your answer
now it's now I don't even do it anymore
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but it's five seconds or less if you do
so that minute is like kind of testing
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my blood sugar underneath my desk in the
middle of school I didn't like and
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getting low a lot and having to get
sodas I'm having to excuse myself from
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sports and things like that I remember
going to a restaurant right after I was
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diagnosed and ordered actually pancakes
and the waiter brought syrup by and my
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dad yelled across the the whole
restaurant you know like we can't have
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regular syrup my son has diabetes and
I'm like oh God so they had to get this
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special like you know low sugar syrup
for me so I was just kind of like
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dealing with embarrassment already is an
awkward fifteen-year-old and then having
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this extra thing lumped on me just
wasn't that fun but like I said I tried
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to just kind of take it and run with it
and use some of these things to my
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advantage which I also tell people to do
whenever you can use type 1 diabetes to
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your advantage it used to be that you
could get in the front of the line at
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Disneyland if you had diabetes but
they got rid of that policy but you can
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get in free two national parks for
example so there's some good things too
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to get out of it and you should take
advantage of it
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what's the first they people say when
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they find out that you
have diabetes I think people do have a
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lot of questions and I don't mind when
people ask me anything if they say hey
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you know like I
don't really know how much about
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diabetes to be honest tell me what it's
like to acts or whatever educate me I'm
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fine with that what bothers me is when
people tell me things you know they'll
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just come up to me at a party they don't
even know I'm a physician and say oh
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type 1 diabetes you can't eat candy
right or did you know that there's a
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cure out there and they're just not
telling you about it that stuff drives
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me crazy so ask me all the questions you
want just don't tell me anything because
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chances are I know more now because I'm
a doctor just because I've been living
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with it for so long
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Do you worry about your boys getting type 1 diabetes
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so I have a four year old and a one year old boy and yes I worry about it
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this is where I can rely on my education and training as a doctor
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in realizing that there's only about a 5 percent chance
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that your kids if you have type 1 will get it
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so if I have type 1 there's a 5 percent chance that they'll get it
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meaning there's a 95 percent chance that they won't get it
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but I think the hardest thing about it is it's just something that I don't want
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to feel like I've given to my son, because the would be devastating
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and I'm going to move on from that one
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How has having diabetes affected your parenting
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I've joked to my wife that if one of our kids gets type 1 diabetes I'd probably end up
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liking that one more just because it's a
way of like bonding with them and you
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have something so serious in common what
I will say about my diabetes in my home
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life is I try to do it all myself
and I maybe that's like the father you
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know masculine provider thing that you
don't want to burden anybody else I just
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I don't want anybody know what my blood
sugar is I don't want suggestions on how
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to kind of fix things I just want to
take care of it and not have it affect
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myself but not really have anybody else
even be aware of it and so if my wife
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and kids go through the day and they
have no idea that anything I did was
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diabetes related than that's a total win for me
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so why do you work for UC San Diego Health I think
there's just a lot going on here so you
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know I do research I do clinical care
I'm somebody living with type 1 diabetes
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our clinical staff are excellent you
know in the clinic that I work with
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there's multiple other people that have
type 1 diabetes not that that makes you
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awesome but it definitely helped
the research I do is clinical research
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so I'm seeing people and doing new
therapies and things like that so it
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really is this hybrid between clinic and
the research that I think is really
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fantastic is a cure for diabetes on the
horizon so basically everyone's always
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been told 10 to 15 years I have friends
that were diagnosed in the 70s and I
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said 10 to 15 years 80s 10 to 15 years
obviously we haven't had it in 10 to 15
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years I don't want to put a date on it
for that reason I will say that I don't
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know when the Cure is going to be but in
the next 3 years something very tangible
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and close we will have completely
automated insulin delivery systems that
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will deliver insulin based on your
continuous glucose monitor without you
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having to do much of anything counting
carbs you know thinking less about
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exercise things like that so it's not a
cure still palm continuous glucose
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monitor all this stuff you have to wear
but it's just gonna get a lot easier but
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you know less for us to think about and
better control do you wish you could
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take a vacation away from your diabetes
absolutely I mean this is something
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about diabetes in general and type 1 is
it's it's every minute of every day
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literally I can look right now and see
my blood sugar is if it's high or low I
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probably have to do something I have
thought about though what if there was a
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cure how weird would it be to not have
type 1 diabetes because it is such a big
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part of me and you're gonna be strange
to all sudden just kind of walk away
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from it don't get me wrong I would love
it I'm trying to find this cure for me
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and everybody else out there so yes I
want a vacation but yes but it's also
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part of me alright ok anything I would
like to add I would just say that again
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you know if I when I was 15 I remember
feeling really bummed out that I was
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diagnosed with this and I I didn't
understand really then that this would
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really be something that I'd be living
with potentially for the rest of my life
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but now sitting here where I am now you
know I I think that 15 year old would be
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really proud
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