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Personal data: What does GDPR mean for your research data? - YouTube
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researchers are very conscientious and
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in terms of the general data protection
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regulation there's a lot that
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researchers are already doing right so
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there should be no need to panic
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researchers are used to being
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trustworthy processors of data on behalf
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of their human subjects and they care
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and they go about informing people about
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their research and getting the proper
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consent so none of that needs to change
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but there are there may be some legal
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issues that haven't been thought of
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before so for example if you're
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transcribing an interview and you're
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hiring someone to do that you want to
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make a legal agreement because they're a
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data processor of that data and that's a
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risk that you need to make sure that
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you've accounted for another aspect is
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if you're sharing data that involves
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human subjects you may want to create a
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data use agreement with the person
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you're sharing it with it's certainly a
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good idea to use the guidance of the
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university's data protection officer
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which is online or contact them or talk
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to us in case it's something that that
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we can help you with in the first
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instance the research data support team
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yes I think the question of sensitive
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data you know troubles lots of
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researchers and I think I mean partly
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because there's some confusion over
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there the term in a way because it has
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official meanings in the Data Protection
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Act and the GDP or now and then for say
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social scientists or some kind of
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humanities researchers what might count
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as sensitive or not sensitive kind of
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varies but I think we really also have
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to think about what is it that sensitive
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for our participants which may not be
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the same as what's sensitive for us as
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researchers so I think that's the first
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thing that we need to kind of
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disentangle really is who is a sensitive
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for or to and really take our
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participants kind of lead on that in
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terms of what they think needs you know
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needs to be considered especially
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sensitive or not but the the other thing
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I guess is because
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you know the kind of recent history of
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the social sciences has been to to the
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way of taking care of data has been to
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kind of lock it up or destroy it after
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interviews and that's been seen as the
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way to kind of manage sensitive data is
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that you kind of destroy it afterwards
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but there's that's really changing now
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and so now there's the kind of
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possibilities of sharing data and
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archiving it and making it public in
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various ways so I think so I think we
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need to think about all data really
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carefully all data needs really careful
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attention but not all data needs to be
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locked away so yeah I think it's really
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important now at consent forms that we
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include the possibilities of lots of
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different ways that data might be used
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in the future so that our consent forms
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don't just include I was a researcher
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I'm going to use the data in this way
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for this particular project but that we
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include the possibility that the data
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might be used in the future which might
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be then it's a very near future or it
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might be the far future by other
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researchers or indeed by by non
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academics maybe if we make the data
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available in that way and I suppose you
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know something like the GDP or will or
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maybe have this effect because it's it's
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I guess driving us to think more about a
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more granular approach to consent and
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kind of breaking consents down
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explicitly in different ways that data
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might be used so I think the question of
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what to share through a facility like
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data showers are you know it's a really
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important question for researchers to
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think through now and and I think you
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know not so long ago this question
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wouldn't have been on researchers
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agendas I think in the way that it is
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increasingly now and so I think once the
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question would have been oh can we can
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we share anything is there anything that
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can go into the public domain but I
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think that question is really shifting
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to thinking about actually why not share
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this through data share
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so rather than thinking what is it
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possible to share actually now I think
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the question is a little bit more like
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well what's the rationale for not
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sharing data so so I think we need to
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think again really carefully with all of
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our data yeah needs this kind of careful
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attention and careful thinking through
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and I also think then that participants
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need to be kind of part of that process
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so that when we're having interviews or
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encounters with people that were putting
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that idea into people's mind so that
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they can think through for themselves
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what the implications might be for them
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also so that the decision is not one
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that the researcher is making a loan but
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the researcher might be making in kind
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of conversation with research
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participants when that's appropriate
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so the research data service has a
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couple of new initiatives that will help
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people who are dealing with personal
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data the researchers so in the active
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phase when they're working on the data
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and analyzing it if it's if the data is
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too sensitive to use on the normal data
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store service which is what we have for
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everyday research and it gets backed up
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and it's centrally located they can
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apply to use the data safe haven and in
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that way the data stays on a secure
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server and the only people who can
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access it are the approved researchers
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who go in through a remote desktop and
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so it stays safe there's no copies
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proliferating and being left on drains
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and things like that we also have on the
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archiving side the data vault also a new
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part of the service in which sensitive
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data will be encrypted and put on tape
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for a long-term retention as long as the
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data needs to be kept and it will be
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securely destroyed at the end if that's
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what's needed or preserved further
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