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What is Vision Impairment? - Vision Awareness Training Part One - YouTube
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my visual impairment is called
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congenital nystagmus and I've had it
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since I was born
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and it's an involuntary eye movement
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because I'm partially sighted I do have
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a good level of vision so I can see sort
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of around me but I just need adaptations
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while working in child care environment
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is really good for someone in my
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position because in a center like this
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we have to be inclusive anyway of
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everyone on every child who comes into
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the setting or every parent who comes
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into the setting so really everything
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that was pretty much in place anyway a
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tremendous shock to me when I was first
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told that I'd got macular degeneration
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because you think it's you've got to
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lose your sight completely and it's
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going to be the end of your life in
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effect it is only the central vision
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that goes and that the peripheral vision
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remains okay you can get about you can
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see you where around you don't fall over
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things you can enjoy everything around
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you you can enjoy the sky and the sunset
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and the trees and but the awful thing is
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you can't read my eye condition is
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diabetic retinopathy I've suffered for
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that now for the effects of it for
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probably eight or nine years now my
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vision loss is primarily peripheral I
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have no peripheral vision at all now my
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central light my central site has been
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affected as well but to a much lesser
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extent than the peripheral I work for
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the oxytree Association for the blind I
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volunteer doing IT work with them to do
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that sort of work really I've used
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magnifiers I need to have a decent light
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source and to be able to see what I'm
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doing once I've made the adjustments to
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the computer kit
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then obviously I can see it as well as
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anybody else can I went to the doctor
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and said I think I am seeing far less
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well she referred me to the eye hospital
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and has been confirmed and I'm having
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treatment in one eye for what is known
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as wet macular I can read using a
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magnifying glass with a light but it's
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not the same as reading a book as I've
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always done in my life there are many
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different causes of sight loss vision
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impairment or sight loss can be defined
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as reduced vision that cannot be
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corrected with glasses contact lenses
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surgery or medical management vision
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impairment can broadly be classified
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into central loss or peripheral loss
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patients may have one or both types of
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loss individuals respond to sight loss
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in different ways
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by bring a microphone glass with me the
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time it's always in my bags and I use
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that for you know reading receipts and
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things like that from parents I find
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that a lot of misconceptions are down to
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the fact that they think people think
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I'm clumsy
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or I'm bit stupid and a lot of this down
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to the fact that I take longer to do
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certain tasks even if it's just washing
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up something simple like that a friend
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down the street for instance said I saw
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you the other day I was wait I was
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waving at you was saying hello and you
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didn't you didn't turn around and they
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do you think you're already rude and you
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just have to say oh that's nice because
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I couldn't see you it is a loss it's
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something that you've had taken away
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from you very suddenly you go into the
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hospital one day for what you think is a
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checkup
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and come out having had something taken
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away from you and I found it it took me
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several years to actually work my mind
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through all the problems that I was
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going to face because I could only then
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see it as a problem when we have dark
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days my sight is worse harder work one
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thing I do miss is seeing people's faces
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because by and large looking at a face
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is a fairly bright experience and you
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don't always recognize who people are
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there's no there's no visual clues to my
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disability and if I was bumping into
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people on the street because I was going
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past and I didn't see them when they
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were coming in from the side often with
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children because below a certain height
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I can't see either
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so I'll bump into children running
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around and then the parents will get
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upset so there is that negative aspect
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to moving around particularly crowded
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areas it's central lastly is very
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differently different than peripheral
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often you'll find that with peripheral
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what I'm doing is I'm sweeping the
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ground in front of me with my stick so
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that I can feel for any objects that
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might be in the way of me walking
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whereas central is there it is different
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although some people do use canes
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they're using it for a different purpose
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because they can't see as well what is
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directly in front of them I can't see
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what's on the floor in front of me but a
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lot of us you know we do it's kind of
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hidden I I can never understand what you
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can see and I don't really expect
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anybody to understand what I can see so
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we're all different until we start
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comparing so I don't want to have a
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label necessarily and go around with
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let's say a stick when I don't need it
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I'd like to tell people no I'm here at
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work because I can do my job
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vision impairment can broadly be
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classified into central loss or
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peripheral loss patients with central
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loss typically have difficulty
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recognizing faces reading and seeing
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fine detail
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patients with peripheral loss typically
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have difficulty navigating in crowded
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environments and seeing obstacles on the
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floor and to the sides everyone responds
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differently to their sight loss and to
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the impact that it has in their life
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having sight loss does not necessarily
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mean your patient is blind losing sight
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is akin to a bereavement process
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patients may be in shock denial or
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disbelief before coming to terms with
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their diagnosis it can be difficult to
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tell if someone has sight loss look out
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for clues such as wearing dark glasses
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indoors using a white cane or having a
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guide dog however there may not be any
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physical signs it's okay to ask if
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you're not sure
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one of the best things the Health
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Service did was to get around to asking
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doctors always to announce nurses and
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doctors to announce who they are that's
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a big step forward part of my current
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treatment well its injection to the eye
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and I have had the kindness you know
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shall I hold your hand sort of situation
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which is human humane I think when
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dealing with them patients whether it be
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in patients or out patients at the
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hospital staff need to not assume what
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can and can't be seen with visual
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impairment because there's so many
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different types that you really need to
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get a handle on what that particular
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patient can see and can't see before you
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do anything else it's no good talking to
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somebody from afar if they can't see you
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they've not going to know that you're
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speaking to them it's a question of
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underst spending a couple of minutes to
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understand what the visual problem is
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and how you can best relate to the
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patient things like when you're cutting
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out patients names and stuff like that
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realize that a lot of the time we can't
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see them so there's a lot of pointing
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going on from staff and we can't really
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see where they are what they're doing so
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it's good to sort of come over or come
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close to the patients in the waiting
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room and realize that everybody has got
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different needs
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always remember to introduce yourself
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and speak clearly don't assume what your
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patient can or cannot see it's okay to
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ask
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don't point when giving directions take
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the time to go over to your patient and
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guide them to where they need to be
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you have to recognize that if you can't
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read you can't do the things you love
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the things you used to enjoy you think
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now what what else you started to enjoy
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but didn't have time for so in my case
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instead of reading I've always been
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enjoyed gardening I like flowers and
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shrubs and things and in retirement I
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took to having a half allotment and so
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now I don't have time for the reading
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even if I could because I've got to
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plant the seedlings and I can still be
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Novosel provisions gone I can still tell
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a weed from a seedling and I've got new
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pleasures to substitute for the ones
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I've lost I really enjoy life I've never
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really seen it a visual impairment as
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being any kind of a problem I see it as
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a challenge more than anything I do I am
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pretty much aware that there are very
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various barriers that crop up in
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day-to-day life that can be frustrating
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indeed but I might know I'm going to get
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round those barriers early intervention
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and rehabilitation is the key to
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developing a positive outcome life does
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not need to stop after diagnosis of
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sight loss
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